National PKU News: The Learning Place Index

 

National PKU News Index

The Learning Place (Updated Through Volume 18, Number 1, Spring/Summer 2006)

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ISSUE

YR

VOL

NO

TITLE

F 2000 12 2 Maternal PKU pamphlets from CPN
F 2000 12 2 PKU Pen Pals (www.ess.sunysb.edu/tracy/penpals.html)
F 2000 12 2 Tax deductions for families attending medical conferences
F 2000 12 2 Low Protein Cookery for PKU, new third edition is available
W 2001 12 3 New PKU Internet Listserv groups: Late-Diagnosed PKU, Hyperphe and Adult PKU (To join, e-mail Coalition4PKUad@aol.com.)
F 2001 13 2 Eat Right, Stay Bright teaching tool.
F 2001 13 2 PKU Primer brochure for young adults and adolescents.
F 2002 14 2 The law and PKU school lunches (For information go to: www.tdh.state.tx.us/newborn/lunch.htm).
F 2002 14 2 Really Living with PKU (15 minute video for new families).
F 2002 14 2 Pre-payment orders for new second edition Low Protein Food List for PKU.
W 2003 14 3 (No Learning Place in this issue)
W 2004 15 3 Katie video (5 minute video of late-treated adult before and after diet)
W 2004 15 3 Really Living with PKU (video available from CPN)
SS 2004 16 1 Summer camps (information on this web site in Support section)
SS 2004 16 1 Family Friendly PKU Recipes cookbook
SS 2005 17 1 Everybody has Something by Margie Domnick, Harper, KS (www.everybodyhAssomething.com)
SS 2005 17 1 What Can I Eat? A Guide for Adults Living with PKU by Dianne Sullivan, Frances Rohr, and Melissa Gennaccaro (Children’s Hospital Metabolism Clinic, 1 Autumn St. Rm. 527, Boston, MA 02115).
SS 2006 18 1 Taylor’s Book: A Daily PKU Planning System (taylorsbook@comcast.net)
SS 2006 18 1 Overcoming A Bad Gene by Dr. Seymour Kaufman (www.amazon.com)

 


Last update: August 2006
National PKU News: www.pkunews.org
E-mail: schuett@pkunews.org